Thursday, March 1, 2012

The Beginning

This is 4-year-old Judah's story. I, his sister, am writing this blog so we will have somewhere to journal his disease. Most days this will be filled with how he feels. Some days it will be doctor appointment mumbo jumbo.
We noticed Judah limping at the beginning of January 2012. Some days it would be worse and some days better. As with most Perthes patients, we thought it was his knee. By the beginning of February, we realized it was his hip. We took him to our local Urgent Care on February 6, and on the first x-ray examination they saw nothing abnormal. When the radiologist read the report they saw a "fracture", which on the report they concluded it probably was Legg Calve Perthes Disease.
 We then got an appointment with an orthopedic doctor on February 9. Dr. Hegg concluded it was Legg Calve Perthes Disease. Upon x-ray of his right hip, there was some flattening and sclerosis. We were told it can result in significant loss of motion and early development of hip arthritis. We are to try to maintain the motion in that leg with physical therapy and try to keep a four-year-old from running, jumping, and ball sports in the early phases of this disease. We go for physical therapy on March 8, and a follow-up with the orthopedic doctor May 1.
The following is his range of motion numbers for our records.
Left hip flexion 150-160
Right hip flexion 135-140
Left hip internal rotation 20
Right hip internal rotation 25
Left hip external rotation 65-70
Right hip external rotation 35-40
Left hip abduction 55
Right hip abduction 40
Left hip adduction 35
Right hip adduction 25
Right hip vascular NVI distally
Right hip palpation non-tender Howorth is positive

Cassia

5 comments:

  1. Sorry to hear about your brother. My mom and I googled Legg Calve Perthes Disease after looking at your blog. I hope Judah can recover well from this!

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  2. Hi Cassia. It's Mrs. Renee McGill from CHENM. We miss your family! You are wonderful, loving big sister to take the time to keep this blog as a journal for Judah. I prayed for Judah this morning and for your family as you care for him. Take care!

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  3. Thank you for sharing this journey. I will continue to pray for Judah and your family while you are learning how to deal with Perthes. May the Lord see fit to get glory from this situation. Praying Always, Brandi

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  4. This touched my heart and I will pray that he gets better. Thanks for sharing his story, your journey I will preposterous a link from my blog, http://fabtechguy.com

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  5. Cassia, this is a wonderful thing to do for Judah, and for all the rest of us to keep us in the loop! As always, we're praying for him and all of you!

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